Jay scolded me because I haven't posted in a while. I've been busy.
Sort of.
OK, I'll admit it. I've been playing this totally addictive game that I got to from Fark. com. It's called Blueprint and you can find it here.
I'm only on level 7 and I'm stuck! I can't figure out how to get that stupid ball to hit the target. And the game is so new that there aren't any tips yet. So, I sent it to my friends and family, knowing that they, too, would become addicted. Then someone would figure out that damn seventh puzzle and tell me how to do it.
I'm still waiting!
So, I guess I'll just try it again. There's got to be a way!
I've put the kettle on, so come in and make yourself comfortable. Get out your knitting or whatever craft you want. And don't mind the dogs, they'll settle down.
Wednesday, February 22, 2006
Buonasera
I’m learning Italian because I’m going to Italy next year. I’ve learned that “Ciao” is very familiar, that cappuccino is considered a morning drink, and that to pronounce “grazie” correctly, you have to pronounce the “eh” at the end, not just “ee”.
I’ve also learned that I probably will not be speaking much Italian when I go to Italy because all I can remember after 6 weeks is “Mi chiamo Kelley.”
It’s a fun class and it’s a beautiful language, but I’m just not putting the time into it that I should (there’s that damn “should” word again). It’s a non-credit class with no tests, so I only have my own encouragement and self-discipline to learn. THAT won’t work. Plan B!
OK, there is no Plan B. I’m going to become comfortable with this language. At least I can read a menu and count, so I can eat and pay for my food. I figure that’s pretty good. But they speak so quickly, that I need to find out how to say, “Can you repeat that slowly, please?” I need to get a list of comments like that and “Where is the bathroom” and ask my teacher, Rosalie, how to say them.
We have a 2-week break, then we start Italian II. So, I’ve got 2 weeks to get up to speed on the stuff I should already be up to speed on.
Ciao!
I’ve also learned that I probably will not be speaking much Italian when I go to Italy because all I can remember after 6 weeks is “Mi chiamo Kelley.”
It’s a fun class and it’s a beautiful language, but I’m just not putting the time into it that I should (there’s that damn “should” word again). It’s a non-credit class with no tests, so I only have my own encouragement and self-discipline to learn. THAT won’t work. Plan B!
OK, there is no Plan B. I’m going to become comfortable with this language. At least I can read a menu and count, so I can eat and pay for my food. I figure that’s pretty good. But they speak so quickly, that I need to find out how to say, “Can you repeat that slowly, please?” I need to get a list of comments like that and “Where is the bathroom” and ask my teacher, Rosalie, how to say them.
We have a 2-week break, then we start Italian II. So, I’ve got 2 weeks to get up to speed on the stuff I should already be up to speed on.
Ciao!
Saturday, February 18, 2006
Burrrrrr!
It's so cold here that it froze our friggin' cable! Aaaaahhhhh! No Internet access! We actually got up early and went to Panera Bread Company for breakfast because they have free Wi-Fi. And Al doesn't like Panera!
Good ego boost, though--I had mucho emails from my friends and families. Most just chatting. I love email.
So, how cold is it? The high today is 8, and the low last night and tonight is -2 or colder. But did we let the cold stop us? Hell no! We went out for pizza with friends then went out for dessert with them then went to a motorcycle show today. Yeah, I know. Kelley went to a motocycle show? That's just the kind of supportive and loving wife I am. Actually, it was pretty cool. There was some "Orange County Chopper" style bikes there, and some really old Harleys, Indians, and Triumphs. And leather! Holy Cow I've never seen so much leather in all my life. And chains, but we won't go there.
The cool thing is that I got a red rubber "Support MS" band. The MS Society has a motorcyle "Poker Run" fundraiser. It's like the yellow Lance Armstrong bands, which I would have too, but since I've recently been diagnosed with MS, I decided to get one. It's cool and it seems to cheer me to wear it. For some reason, when I look at it, it reminds me that just because I have MS, doesn't mean everything is over. It reminds me there is still a lot of work being done and that there are people out there who support MS research and care. It also kind of reminds me to be happy and go out and do! Not because I should before it's too late, but because there's no reason not to.
Mmmmmmmm, Al made coffee and it's almost done brewing. And genius that he is, he's decided we should put Irish Cream in it. Double Mmmmmmm. I think I'll pour a big cup and pick a new book to read. Hmmmmm. Mystery, adventure, or nonfiction? Choices, choices, choices.
Good ego boost, though--I had mucho emails from my friends and families. Most just chatting. I love email.
So, how cold is it? The high today is 8, and the low last night and tonight is -2 or colder. But did we let the cold stop us? Hell no! We went out for pizza with friends then went out for dessert with them then went to a motorcycle show today. Yeah, I know. Kelley went to a motocycle show? That's just the kind of supportive and loving wife I am. Actually, it was pretty cool. There was some "Orange County Chopper" style bikes there, and some really old Harleys, Indians, and Triumphs. And leather! Holy Cow I've never seen so much leather in all my life. And chains, but we won't go there.
The cool thing is that I got a red rubber "Support MS" band. The MS Society has a motorcyle "Poker Run" fundraiser. It's like the yellow Lance Armstrong bands, which I would have too, but since I've recently been diagnosed with MS, I decided to get one. It's cool and it seems to cheer me to wear it. For some reason, when I look at it, it reminds me that just because I have MS, doesn't mean everything is over. It reminds me there is still a lot of work being done and that there are people out there who support MS research and care. It also kind of reminds me to be happy and go out and do! Not because I should before it's too late, but because there's no reason not to.
Mmmmmmmm, Al made coffee and it's almost done brewing. And genius that he is, he's decided we should put Irish Cream in it. Double Mmmmmmm. I think I'll pour a big cup and pick a new book to read. Hmmmmm. Mystery, adventure, or nonfiction? Choices, choices, choices.
Thursday, February 16, 2006
I Should Be
I had a therapist once tell me that I had a huge “should list.” Part of our sessions were convincing me that some of those things aren’t really “shoulds,” and that I put too much pressure on myself to do everything that I think I should be doing instead of what I really should be doing. Does that make sense?
No, I didn’t think so. Basically, she’s telling me I’m trying to take on too much and that maybe, just maybe, some of the things I beat myself up over, aren’t so important and therefore should not be a “should.”
So, what to do? Why, make a list of course! Ya gotta start somewhere. I can’t cull until I know what I’m dealing with. So, here it goes, in no particular order.
I should be:
1. Exercising every day instead of lucky-to-get-it-in-three-times-a-week.
2. Cleaning the house more often and more completely.
3. Vacuuming more than every 3 weeks or so. Oh, who am I kidding? I don’t vacuum. I just keep putting it off until Al can’t stand it and he’ll vacuum.
4. Cleaning my shower more often. One word: Eww
5. Eating 5 servings of fruits and vegetables a day.
6. Not eating 5 servings of something fried a day.
7. Spending more time reading a book rather than reading Project Runway message boards.
8. Typing up the stuff from the committee I’m chairing for the church bulletin instead of typing this silly list.
9. Trying to stop procrastinating. Oh look, there’s an episode of Charmed I’ve only seen 4 times; guess I better watch it again.
10. Figuring out what to cook for dinner.
11. Actually cooking dinner.
12. Cooking healthier meals.
13. Brushing my dog every day so that when I take her into the groomer, she doesn’t look at me like I’m the Joan Crawford of Doggie Moms.
14. Traveling more.
15. In Scotland.
16. Preparing for our trip to Italy next year.
17. Studying my Italian language homework.
18. Writing every day.
19. Finishing that short story and send it out.
20. Working on that novel I’ve been wanting to write and can’t sleep because I keep dreaming scenes for it.
21. Petting my dog. I will love her and pet her and squeeze her and hug her and call her Daily Dog.
22. Loving Al more.
23. Not taking Al for granted.
24. Telling my family that I love them.
25. Forgiving my father.
26. Not worrying about my mom, my brother, my husband, and my dog all the time.
27. Going out with my girlfriends instead of staying alone in my house.
28. Pampering myself more often, maybe my skin would look better.
29. Shaving my legs more often.
30. Praying more often.
31. Knitting more often and actually finishing the projects I’ve started.
32. Scrapbooking more often and actually finishing the projects I’ve started.
33. Painting the closets, my bathroom and my craftroom.
34. Learning how to spin yarn.
35. Appreciating that I have a warm house, food in the frig, and a husband who loves me, puts up with me, and takes care of me. And he’s a nice guy, too.
36. Not feeling like I’ve wasted a huge part of my life since I’ve been diagnosed with MS, as if I won’t be able to do the things I still want to do.
37. Liking myself more than I do.
38. Letting people like me and letting them in.
39. Dreading the weekly shot of Avonex.
40. Giving myself a break.
OK, that’s enough. It’s getting late, and I really should be working on other stuff.
Should? I’m growing to dislike that word immensely
No, I didn’t think so. Basically, she’s telling me I’m trying to take on too much and that maybe, just maybe, some of the things I beat myself up over, aren’t so important and therefore should not be a “should.”
So, what to do? Why, make a list of course! Ya gotta start somewhere. I can’t cull until I know what I’m dealing with. So, here it goes, in no particular order.
I should be:
1. Exercising every day instead of lucky-to-get-it-in-three-times-a-week.
2. Cleaning the house more often and more completely.
3. Vacuuming more than every 3 weeks or so. Oh, who am I kidding? I don’t vacuum. I just keep putting it off until Al can’t stand it and he’ll vacuum.
4. Cleaning my shower more often. One word: Eww
5. Eating 5 servings of fruits and vegetables a day.
6. Not eating 5 servings of something fried a day.
7. Spending more time reading a book rather than reading Project Runway message boards.
8. Typing up the stuff from the committee I’m chairing for the church bulletin instead of typing this silly list.
9. Trying to stop procrastinating. Oh look, there’s an episode of Charmed I’ve only seen 4 times; guess I better watch it again.
10. Figuring out what to cook for dinner.
11. Actually cooking dinner.
12. Cooking healthier meals.
13. Brushing my dog every day so that when I take her into the groomer, she doesn’t look at me like I’m the Joan Crawford of Doggie Moms.
14. Traveling more.
15. In Scotland.
16. Preparing for our trip to Italy next year.
17. Studying my Italian language homework.
18. Writing every day.
19. Finishing that short story and send it out.
20. Working on that novel I’ve been wanting to write and can’t sleep because I keep dreaming scenes for it.
21. Petting my dog. I will love her and pet her and squeeze her and hug her and call her Daily Dog.
22. Loving Al more.
23. Not taking Al for granted.
24. Telling my family that I love them.
25. Forgiving my father.
26. Not worrying about my mom, my brother, my husband, and my dog all the time.
27. Going out with my girlfriends instead of staying alone in my house.
28. Pampering myself more often, maybe my skin would look better.
29. Shaving my legs more often.
30. Praying more often.
31. Knitting more often and actually finishing the projects I’ve started.
32. Scrapbooking more often and actually finishing the projects I’ve started.
33. Painting the closets, my bathroom and my craftroom.
34. Learning how to spin yarn.
35. Appreciating that I have a warm house, food in the frig, and a husband who loves me, puts up with me, and takes care of me. And he’s a nice guy, too.
36. Not feeling like I’ve wasted a huge part of my life since I’ve been diagnosed with MS, as if I won’t be able to do the things I still want to do.
37. Liking myself more than I do.
38. Letting people like me and letting them in.
39. Dreading the weekly shot of Avonex.
40. Giving myself a break.
OK, that’s enough. It’s getting late, and I really should be working on other stuff.
Should? I’m growing to dislike that word immensely
Ya Gotta Stretch Yourself
When I volunteered to chair a committee for our church's pledge campaign, I thought it would be very good for me. I thought I needed to stretch myself and start taking on some responsibility and using my brain again, after a year break while living in Ohio.
Right aftwards, I decided I was out of my mind! What was a I thinking? Leading a Spiritual Life committee with 10 members, all looking to me for orders and direction? Never again.
But, I was right the first time. It was a good idea for me to take this on and to stretch myself. I'm working with an amazing group of people who are willing to do anything to help. And not only that, they thank me for the work I do! I don't think that's happened before.
So, this stretching myself and taking on things that might make me uncomfortable is good thing. I should do it more often.
And I'll probably get the chance, especially with this church. I made the mistake of telling my pastor that I was a little bored. You should never tell your pastor that you're bored--He will always have something for you to do. But that's OK. I need things to do to get me motivated to do more.
Right aftwards, I decided I was out of my mind! What was a I thinking? Leading a Spiritual Life committee with 10 members, all looking to me for orders and direction? Never again.
But, I was right the first time. It was a good idea for me to take this on and to stretch myself. I'm working with an amazing group of people who are willing to do anything to help. And not only that, they thank me for the work I do! I don't think that's happened before.
So, this stretching myself and taking on things that might make me uncomfortable is good thing. I should do it more often.
And I'll probably get the chance, especially with this church. I made the mistake of telling my pastor that I was a little bored. You should never tell your pastor that you're bored--He will always have something for you to do. But that's OK. I need things to do to get me motivated to do more.
Wednesday, February 15, 2006
Cheney Takes Responisibility
Seems to be the theme of this administration, "I take full responsibility," after I've tried to blame someone else and the American public saw through it. Now that the injuries are worse than first thought, now that it's not just a matter of him not coming forward sooner, now that he has no other choice, NOW he takes the blame.
Unbelievable. Arrogant. Cold-hearted and typical.
This is a horrible story. It would be horrible whoever it happened to, but it's even more horrible that it has happened to a leader of the country. Not because he's more important, but because he sets an example, a bad one. The first stories came out that the poor old man (notice how many times they gave Whittington's age?) didn't let Cheney know. What did they tell Whittington's family? "Sorry your dottering old man didn't let me know he was there like he was supposed to"? Did they also tell the family to stay quiet? Haven't heard much from them.
But let's not think about the victim, let's think about poor, "shaken" Cheney. Yes, it sucks that he has to go through this publicly, but that's what happens when you are the second most powerful politician/man in the country. You're held to a higher standard. And I don't blame them for waiting until they knew Whittington was OK before they released the information. And I do think they had more than a say in what Armstrong said to the press. And it was a bad decision to give it to the Corpus Christi paper. That's not a slam on their paper or their importance in this country, that's a statement of opinion. It was a low-down, sneaky thing to do. Make it seem like not such a big idea by giving it to the local press. Then, when it come out, blame the national news as bad losers:
"I had a bit of the feeling that the press corps was upset because, to some extent, it was about them — they didn't like the idea that we called the Corpus Christi Caller-Times instead of The New York Times," he said. "But it strikes me that the Corpus Christi Caller-Times is just as valid a news outlet as The New York Times is, especially for covering a major story in south Texas." Cheney.
None of this was handled well, and it's just another example of this administration thinking they are so much smarter and so much above the citizens they are vowed to serve.
Unbelievable. Arrogant. Cold-hearted and typical.
This is a horrible story. It would be horrible whoever it happened to, but it's even more horrible that it has happened to a leader of the country. Not because he's more important, but because he sets an example, a bad one. The first stories came out that the poor old man (notice how many times they gave Whittington's age?) didn't let Cheney know. What did they tell Whittington's family? "Sorry your dottering old man didn't let me know he was there like he was supposed to"? Did they also tell the family to stay quiet? Haven't heard much from them.
But let's not think about the victim, let's think about poor, "shaken" Cheney. Yes, it sucks that he has to go through this publicly, but that's what happens when you are the second most powerful politician/man in the country. You're held to a higher standard. And I don't blame them for waiting until they knew Whittington was OK before they released the information. And I do think they had more than a say in what Armstrong said to the press. And it was a bad decision to give it to the Corpus Christi paper. That's not a slam on their paper or their importance in this country, that's a statement of opinion. It was a low-down, sneaky thing to do. Make it seem like not such a big idea by giving it to the local press. Then, when it come out, blame the national news as bad losers:
"I had a bit of the feeling that the press corps was upset because, to some extent, it was about them — they didn't like the idea that we called the Corpus Christi Caller-Times instead of The New York Times," he said. "But it strikes me that the Corpus Christi Caller-Times is just as valid a news outlet as The New York Times is, especially for covering a major story in south Texas." Cheney.
None of this was handled well, and it's just another example of this administration thinking they are so much smarter and so much above the citizens they are vowed to serve.
Is There No Hope at All?
Sheesh! First, a low-fat diet isn't the cure-all that everyone thinks. Turns out it doesn't have as big effect on heart disease and cancer as we thought.
Now, calcium isn't as good as we thought! The latest is here. I'm not quite to the age that I have to worry about this, but I always felt a little safe because I get a lot of calcium, being a big milk drinker, cheese eater, yogart eater, orange juice with calcium drinker . . . But now, even a supplement isn't enough.
There's just no hope. Might as well go eat Fish-n-Chips at the Dundee Dell and drink some more beer.
Now, calcium isn't as good as we thought! The latest is here. I'm not quite to the age that I have to worry about this, but I always felt a little safe because I get a lot of calcium, being a big milk drinker, cheese eater, yogart eater, orange juice with calcium drinker . . . But now, even a supplement isn't enough.
There's just no hope. Might as well go eat Fish-n-Chips at the Dundee Dell and drink some more beer.
Not Surprised
Your Inner European is Irish! |
![]() Sprited and boisterous! You drink everyone under the table. |
Tuesday, February 14, 2006
That's OK, Too!
White House Finds Humor in Hunting Mishap
Yet, I don't find it funny at all. But that's this administration for you. Try to get away from anything that might show them in a bad light by making jokes and demeaning the whole issue. If this had been Hillary, do you think they'd be making these jokes? Here's the article.
Root for the PBGV!!
You Know You've Been Married A Long Time When . . .
You don't do anything for Valentine's Day and you don't feel guilty. OK, maybe a little guilty. Al brought home flowers, a card and some Godiva hearts last night. They were still in the store sack, so he just brought them out one at a time and handed them to me. It was really kind of sweet. No more pretense in this relationship! He'll be working on the day, so he got the stuff early. Then I realized that I hadn't gotten him anything!
He said not to worry about it and don't do anything. He knows I've been a little preoccupied with the diagnosis and immanent weekly shots. So, I'm going to take him up on that.
Then my wonderful brother and mother sent cards and Snickers hearts! OK, now I really feel guilty. I didn't get them anything, either. But they, too, understand, I'm sure.
One of these days, everything will become routine again, and I won't feel like I'm just making it one day at a time. Then maybe I'll start working on some changes in my attitude and get some stuff done.
Maybe I should make a list? Naw. Too broad right now. I need to wait until I can think of specific goals. So, I'll just put that off for a while! Yeah! See, I'm returning more to normal every day!
He said not to worry about it and don't do anything. He knows I've been a little preoccupied with the diagnosis and immanent weekly shots. So, I'm going to take him up on that.
Then my wonderful brother and mother sent cards and Snickers hearts! OK, now I really feel guilty. I didn't get them anything, either. But they, too, understand, I'm sure.
One of these days, everything will become routine again, and I won't feel like I'm just making it one day at a time. Then maybe I'll start working on some changes in my attitude and get some stuff done.
Maybe I should make a list? Naw. Too broad right now. I need to wait until I can think of specific goals. So, I'll just put that off for a while! Yeah! See, I'm returning more to normal every day!
Monday, February 13, 2006
For the Scotland Fans
Just Too Wild!
Friday, February 10, 2006
And Yet Another Fraud
I've been reading about "JT LeRoy" being a fraud for a a while, but now it is official. The latest article is on cnn.com. The actual writer, Laura Albert, wanted to get her work recognized. Congratulations, it worked! Aren't you proud? You aren't really a 25-year-old former male prostitute and drug addict; you're a liar and a fraud. How did you get yourself into this? Didn't you think for a moment, "This will never work. This has been tried before, and they almost always get caught."
The article says that she did it for her estranged partner, Geoffrey Knoop. Estranged? So, now that you aren't a couple any more, there's no bond there to keep the secret? Apparently, Mr. Knoop just couldn't handle the pressure of deceiving the public:
"He's wanted to come clean and let JT fade away," attorney Eric Feig said of Knoop late Monday. "He wanted to take the high road."
Yet, the next sentence:
He's also secured a movie deal to tell his side of the story, Feig said.
Beautiful. I wonder how much Albert is getting for her side of the story. And I wonder if she'll get to write the screenplay.
The article says that she did it for her estranged partner, Geoffrey Knoop. Estranged? So, now that you aren't a couple any more, there's no bond there to keep the secret? Apparently, Mr. Knoop just couldn't handle the pressure of deceiving the public:
"He's wanted to come clean and let JT fade away," attorney Eric Feig said of Knoop late Monday. "He wanted to take the high road."
Yet, the next sentence:
He's also secured a movie deal to tell his side of the story, Feig said.
Beautiful. I wonder how much Albert is getting for her side of the story. And I wonder if she'll get to write the screenplay.
Cute Daily Pic
Thursday, February 09, 2006
Project Runway Is Taking Over
OK, I admit it. After the new episode of Project Runway, I go directly to the website and read Tim's Blog and listen to his podcast and read the boards. I can't help it! I'm addicted to this show, and I don't know anything about making clothes, let alone fashion. But I like reading all the remarks and sometimes I actually agree with them.
This week, Nick was out. I haven't blogged after every new episode, or you would believe me on this next statement: I saw it coming. He wasn't making good choices any more, and the judges were getting tired of him. Not that I think those judges really have any say in who's in or who's out, but still, the writing was on the wall.
Speaking of writing, the reason all this is pretty predictable has to do with writing technique. If I was writing this as a book, how would I hint that a favorite designer was going to be out? OK, besides having a commercial where Heidi says, "Next week, one of your favorites will be out." How would I structure the favorite designer leaving?
The designer who seemed so strong, starts to fall apart. He begins to falter under the pressure, swinging between being a drama queen who has been wronged to being an over-confident yet spoiled child who won't stop to think about what he's doing. The judges start complaining that they are tired of seeing the same ol' design from him ("If I see a fishtale hem again I'm going to scream"). He ends up in the bottom of the pack, instead of the top. He's missed being "out" twice, now.
He is soooooo out of there.
Yet, there's a more practicle, plot-line reason he has to go: Because now the real drama of who will be the final three can be played out on the next episode, where we are down to 4--1) Chloe--the expert technician who always does a flawless job, even though it's not always that exciting; 2) Daniel--the recent fashion school graduate who has come out of his shell to win at least four challenges and had immunity on this last one, saving him from a good chance of being out; 3) Kara--the other girl, the one who sews well, but is unsure of herself, so much so that she is always asking other's advice. There's no way this woman has an original, high-fashion line in her; and 4) Santino--the rebel, the obnoxious one who pisses everyone off not only because he pushes the envelope of fashion but because many times he does it badly, resulting in an unwearable and down-right ugly garmet. Yet, he stays.
High drama in deed.
God! I can't wait for next week!!!!
Oh, and I really think Kara will be gone next week. She may do a really pretty evening gown, but there won't be anything really special about it. And, like I said, I just can't see her doing a whole line, which is what the final three have to do. Besides, there are over 90 pages on the PR message board, most of the messages complaining about Santino. Why would they give that up by getting rid of him?
But, that's just my opinion. I could be wrong.
This week, Nick was out. I haven't blogged after every new episode, or you would believe me on this next statement: I saw it coming. He wasn't making good choices any more, and the judges were getting tired of him. Not that I think those judges really have any say in who's in or who's out, but still, the writing was on the wall.
Speaking of writing, the reason all this is pretty predictable has to do with writing technique. If I was writing this as a book, how would I hint that a favorite designer was going to be out? OK, besides having a commercial where Heidi says, "Next week, one of your favorites will be out." How would I structure the favorite designer leaving?
The designer who seemed so strong, starts to fall apart. He begins to falter under the pressure, swinging between being a drama queen who has been wronged to being an over-confident yet spoiled child who won't stop to think about what he's doing. The judges start complaining that they are tired of seeing the same ol' design from him ("If I see a fishtale hem again I'm going to scream"). He ends up in the bottom of the pack, instead of the top. He's missed being "out" twice, now.
He is soooooo out of there.
Yet, there's a more practicle, plot-line reason he has to go: Because now the real drama of who will be the final three can be played out on the next episode, where we are down to 4--1) Chloe--the expert technician who always does a flawless job, even though it's not always that exciting; 2) Daniel--the recent fashion school graduate who has come out of his shell to win at least four challenges and had immunity on this last one, saving him from a good chance of being out; 3) Kara--the other girl, the one who sews well, but is unsure of herself, so much so that she is always asking other's advice. There's no way this woman has an original, high-fashion line in her; and 4) Santino--the rebel, the obnoxious one who pisses everyone off not only because he pushes the envelope of fashion but because many times he does it badly, resulting in an unwearable and down-right ugly garmet. Yet, he stays.
High drama in deed.
God! I can't wait for next week!!!!
Oh, and I really think Kara will be gone next week. She may do a really pretty evening gown, but there won't be anything really special about it. And, like I said, I just can't see her doing a whole line, which is what the final three have to do. Besides, there are over 90 pages on the PR message board, most of the messages complaining about Santino. Why would they give that up by getting rid of him?
But, that's just my opinion. I could be wrong.
A Mild Case, but . . .
The doctor thinks I have a relatively mild case of MS. My symptoms are suble, and usually, whatever symptoms you have in the first 3 to 5 years is what you'll be dealing with through your life of the disease. So, I'm getting off easy, and I feel very lucky that they caught this with only 1 lesion showing up on my MRI, a little pain in my cheek, a little fatigue, and a little problem losing words.
But.
Did you know all the medication for MS is through injections that I'll have to give myself? I'm lucky that I'm getting the smallest dose and that it is only once a week. However, it's a bigger needle and has to go into a muscle (thigh, rump). I was pretty upset, but I'm starting to come around. I understand how this will help me. It will slow down the disease so it won't be too debilitating too early. And it reduces the number of lesions and relapses I'll have. And that's great. Unfortunately, it won't stop the symptoms I already have, so they will always be with me. Makes sense I guess, there's nerve damage. Can't repair that.
So, the nurse will come and show me and Al how to give the shot. Once a week for the rest of my life, I'll do this. Kind of hard to wrap my head around that. But maybe they'll have an oral medication in that lifetime. And maybe they'll find a way to create this medicine without it costing over $1,000 a month! Again, I'm lucky. I have a husband in the military with a good health care plan. There are ways to get help and insurance for those who need it, but how frustrating to have to be dealing with a disease, an injection, and the costs of it all.
A friend said I was so strong and stoic. Hmmm. I don't think so, really. It's just something that I have to do. I have my moments that I feel sorry for myself. And I imagine that the next day Al is at work, I'll be spending most of it crying into my pillow to release all this stress and fear. But, really, I know how lucky I am. I got diagnosed quickly and early, I got diagnosed at a time when there is medication available that will help, I have good health care and good health insurance, and I've got the support of my family and friends. I try to remember all that.
But.
Did you know all the medication for MS is through injections that I'll have to give myself? I'm lucky that I'm getting the smallest dose and that it is only once a week. However, it's a bigger needle and has to go into a muscle (thigh, rump). I was pretty upset, but I'm starting to come around. I understand how this will help me. It will slow down the disease so it won't be too debilitating too early. And it reduces the number of lesions and relapses I'll have. And that's great. Unfortunately, it won't stop the symptoms I already have, so they will always be with me. Makes sense I guess, there's nerve damage. Can't repair that.
So, the nurse will come and show me and Al how to give the shot. Once a week for the rest of my life, I'll do this. Kind of hard to wrap my head around that. But maybe they'll have an oral medication in that lifetime. And maybe they'll find a way to create this medicine without it costing over $1,000 a month! Again, I'm lucky. I have a husband in the military with a good health care plan. There are ways to get help and insurance for those who need it, but how frustrating to have to be dealing with a disease, an injection, and the costs of it all.
A friend said I was so strong and stoic. Hmmm. I don't think so, really. It's just something that I have to do. I have my moments that I feel sorry for myself. And I imagine that the next day Al is at work, I'll be spending most of it crying into my pillow to release all this stress and fear. But, really, I know how lucky I am. I got diagnosed quickly and early, I got diagnosed at a time when there is medication available that will help, I have good health care and good health insurance, and I've got the support of my family and friends. I try to remember all that.
Sunday, February 05, 2006
Gotta Be Smarter Than The Machine
And I'm not. But I finally got my avatar up. Actually, Jason, my brother, got it up for me. After many "why won't this work" emails, he got it to work for me. He even suggested this one.
Ain't Daily cute? Wow. This was in one of her fuzzy stages. We clip her in the summer, but let her get all shaggy for the winter.
Ain't Daily cute? Wow. This was in one of her fuzzy stages. We clip her in the summer, but let her get all shaggy for the winter.
Thursday, February 02, 2006
Diagnosed
What a stange feeling it is to know that you have a disease.
It was confirmed yesterday that I do have Multiple Sclerosis. Huh. And the only emotional response I had was, "Whew." No crying. No "why me?" No, pity party. I was actually relieved. Finally, there's a reason for why I have this pain and feel the way I do! I'm not crazy! I'm not a hypochondriac! I'm not a whiner!
Whew.
OK, I'm still a whiner, but not about being sick.
Everyone else was surprised. When one has a test, such as a spinal tap, everyone seems obligated to be optimistic. And I felt obligated to be optimistic right along with them, but I knew what the results were going to be. That's not being pessimistic, it's being realistic. It's just too much of a coincidence. I have a pain in my cheek that runs along the trigeminal nerve, the radiologist who reviewed my MRI said the white spot was consistent with patients with MS, the attitude of the neurologist changed while he looked at my MRI and he ordered a spinal tap, and the optometrist did a peripheral vision test and my blind spots are "larger than she likes to see." The cards were pretty stacked. The spinal fluid just proved what I already knew--I was positive for Oligoclonal Bands and IGG (immunoglobulin) in my spinal fluid. Patient is positive for MS.
So, my friends and family are wonderfully sympathetic and supportive. They are trying deal with the news. I'm ahead of them on that because I've been dealing with it for weeks now. I'm ready with my response that this is not a fatal diagnosis and it could be years and years before it gets really bad. If all I have to deal with is a little pain in my cheek, hell, I'm getting off lucky.
There is something scary. Of all the symptoms of MS (and no one has all of them), the one that upsets me most is loss of cognitive ability. Unfortunately, I think that's one of my symptoms. Not horribly noticable, but thinking back, there maybe some loss there. The most obvious for me is losing words. Now, I know everyone has moments when they can't remember a word. I understand how common that is, but at the risk of sounding like a whiner, it's not the same. I'll be talking to Al, and I come to a word I just can't say. I know what it is and I know what I want to say, but I just can't get it from my head to my mouth. It's more than "on the tip of my tongue." It's in a fog that it appears then disappears into, and I can't get it. I didn't forget the word, it's lost. And it won't come to me later. I can say words similar to it, and eventually, Al figures out what I'm saying and supplies the word for me. Damn. It is so frustrating. And it's very scary. What's the one thing I want to make a living at? Writing. And what's the one disease I get? One that takes away my ability to come up with words.
OK, so maybe I'm having a little pity party. It's really not that melodramatic, but in those wee hours when everyone else is asleep and my mind is racing, this is where it goes.
So, the goal now, besides getting to the MS clinic and getting on medication, is to enjoy and do as much as I can while I'm strong enough to do it. And I better get busy! There are stories to write, countries to explore, Scotch to drink, yarns to knit, and books to read (I'm way behind in my Ian Rankin books).
It was confirmed yesterday that I do have Multiple Sclerosis. Huh. And the only emotional response I had was, "Whew." No crying. No "why me?" No, pity party. I was actually relieved. Finally, there's a reason for why I have this pain and feel the way I do! I'm not crazy! I'm not a hypochondriac! I'm not a whiner!
Whew.
OK, I'm still a whiner, but not about being sick.
Everyone else was surprised. When one has a test, such as a spinal tap, everyone seems obligated to be optimistic. And I felt obligated to be optimistic right along with them, but I knew what the results were going to be. That's not being pessimistic, it's being realistic. It's just too much of a coincidence. I have a pain in my cheek that runs along the trigeminal nerve, the radiologist who reviewed my MRI said the white spot was consistent with patients with MS, the attitude of the neurologist changed while he looked at my MRI and he ordered a spinal tap, and the optometrist did a peripheral vision test and my blind spots are "larger than she likes to see." The cards were pretty stacked. The spinal fluid just proved what I already knew--I was positive for Oligoclonal Bands and IGG (immunoglobulin) in my spinal fluid. Patient is positive for MS.
So, my friends and family are wonderfully sympathetic and supportive. They are trying deal with the news. I'm ahead of them on that because I've been dealing with it for weeks now. I'm ready with my response that this is not a fatal diagnosis and it could be years and years before it gets really bad. If all I have to deal with is a little pain in my cheek, hell, I'm getting off lucky.
There is something scary. Of all the symptoms of MS (and no one has all of them), the one that upsets me most is loss of cognitive ability. Unfortunately, I think that's one of my symptoms. Not horribly noticable, but thinking back, there maybe some loss there. The most obvious for me is losing words. Now, I know everyone has moments when they can't remember a word. I understand how common that is, but at the risk of sounding like a whiner, it's not the same. I'll be talking to Al, and I come to a word I just can't say. I know what it is and I know what I want to say, but I just can't get it from my head to my mouth. It's more than "on the tip of my tongue." It's in a fog that it appears then disappears into, and I can't get it. I didn't forget the word, it's lost. And it won't come to me later. I can say words similar to it, and eventually, Al figures out what I'm saying and supplies the word for me. Damn. It is so frustrating. And it's very scary. What's the one thing I want to make a living at? Writing. And what's the one disease I get? One that takes away my ability to come up with words.
OK, so maybe I'm having a little pity party. It's really not that melodramatic, but in those wee hours when everyone else is asleep and my mind is racing, this is where it goes.
So, the goal now, besides getting to the MS clinic and getting on medication, is to enjoy and do as much as I can while I'm strong enough to do it. And I better get busy! There are stories to write, countries to explore, Scotch to drink, yarns to knit, and books to read (I'm way behind in my Ian Rankin books).
Subscribe to:
Posts (Atom)





